Resources
Resources by State
Click on a state to view its pertinent local resources. Or, click the button below the map for a printable resource document for all 50 states.
Books
Books by Persons Living With DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia.
- Alzheimer’s: From the Inside Out, Richard Taylor
- What the Hell Happened to My Brain? Living Beyond DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia., Kate Swaffer (one of many of her books)
- DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia. From the Inside: A Doctor’s Personal Journey of Hope, Dr. Jennifer Bute and Louise Morse
- Somebody That I Used to Know, Wendy Mitchell
- Nothing About Us, Without Us! 20 Years of DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia. Advocacy, Christine Bryden
- Will I Still Be Me?, Christine Bryden
- On Pluto: Inside the Mind of Alzheimer’s, Greg O’Brien
- Memory’s Last Breath, Gerda Saunders
- The Lewy Body Soldier, Norman McNamara
- Blue River Apple: An Exploration of Alzheimer’s Through Poetry, Nancy Nelson
Books by Family Members
- My Mom My Hero, Lisa R. Hirsch (daughter)
- A Path Revealed: How Hope, Love and Joy Found Us Deep in a Maze Called Alzheimer’s, Carlen Maddux (husband)
- Coffee With Mom: Caring For a Parent With DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia., Mike Glenn
- Slow Dancing With a Stranger: Lost and Found in the Age of Alzheimer’s, Meryl Comer (wife)
- My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s CaregiverAnyone who’s responsibility is to provide or help provide for the needs of another., Cathy Breitenbucher and Martin J Schreiber (husband)
- We Danced: Our Story of Love and DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia., Scott M. Rose (husband)
Books by Wonderful People
- Creative Care: A Revolutionary Approach to DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia. and Elder Care, Anne Basting, PhD
- A Dignified Life: The Best Friends Approach to Alzheimer’s Care: A Guide for Care Partners, Virginia Bell and David Troxel
- Learning to Speak Alzheimer’s, Joanne Koenig Coste
- Reclaiming Joy Together: Building a Volunteer Community of Real Hope For Those With DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia., by Daphne Johnston & Dr. Lawson Bryan
- The Alzheimer’s Creativity Project: The Caregiver’s Ultimate Guide to a Good Day; Communication and Activities in he World of Alzheimer’s, Jytte Lokvig
- DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia. Beyond Disease, G. Allen Power MD
- Alzheimer’s Early StagesThere is said to be 3 stages and 7 stages, yet if you know a person living with dementia and you look at the stage descriptions you will see that a person can be in Stage 2 and 4 or Stage 3 and 5. It is not person-centered to put anyone into a box, silo or stage and say this…: First Steps for Family, Friends and Caregivers, Daniel Kuhn
Websites
When you click on these sites it will take you away from this site. Any site mentioned on this page is free.
Timeslips: Explore tools to spark meaningful engagement! Click on a prompt and share your response by audio, image or words. Share with family, or invite them to create with you. Permission from: Anne Basting
https://m4dradio.com M4DRadio, Music For DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia.: We believe in the power of music for people living with dementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia. and those who care for them. M4D radio is part of the Music for Dementia campaign to make music accessible for everyone living with dementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia.. Our ambition is to make music a part of care for all those living with dementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia.. Permission from Sarah Gale
https://dementiaminds.org/ The National Council of DementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia. Minds (NCDM) is a not-for-profit organization led by persons living with dementiaDementia is not a specific disease. It’s an overall term that describes a wide range of symptoms associated with a decline in memory or other thinking skills severe enough to reduce a person’s ability to perform everyday activities. Alzheimer’s disease is the most common type of dementia. whose vision is to transform the worldview of living with a Neurocognitive DisorderNeurocognitive disorder is a general term that describes decreased mental function due to a medical disease other than a psychiatric illness. It is often used synonymously (but incorrectly) with dementia. (NCD).
Downloadable PDFs
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Here are a few signs that may be helpful to post as your loved one may need cueingThe process of providing cues, prompts, hints and other meaningful information, direction or instruction—such as adding labels to drawers—to aid a person who is experiencing memory loss. with pictures.
You can print these on cardstock or regular paper to give out when you are in public – if needed. Be discreet when handing them out.
I had a request for a sheet that 2 sisters who share care of their Mom and wanted to share info from day to day.
This can be used to think about the WHYLet’s say a person living with dementia is upset we give them some ice cream and they are okay, then they are upset again. We can’t keep giving them ice cream, we need to find out the WHY. Why are they upset? If we don’t look for the WHY in any situation we will continue to solve everything with band-aids… of behaviors.
Here are some simple ways you can help a friend, neighbor or family member.
We reference this song in a video. Thought it might be nice to have all the words.
In Things To Do we refer to these adult cool fish coloring or painting pages.
Emergency Info Sheet to keep with a copy of insurance, POA incase needing to go to the ER. You also could put a copy in purse or wallet
In It Takes a Village in the Know How there is a video called ‘Info About Dad’ and this is the card that the son hands out.
What do we look for when visiting a nursing home or assisted living? Here is our big checklist.